Day Three Post-op

So it’s me again. This is Brad.

I think I’m improving at a pretty steady rate, though the tinnitus is constant, loud, and sometimes I get an oscillopsia effect with it where the walls seem to pulse. Also, there is is some spinning vertigo when I transition to fast. Things seem to be worse in the morning and improve as the day goes on.

Dr. Wiet is going to visit me tomorrow around 1, and hopefully I’ll be released. Dressing is supposed to come off today. He has such an incredible reputation here, and I can tell you, as a guy who has been some kind of sick most of his life, he is the kindest, most gentle and reassuring doctor I’ve ever encountered. I had a pre-craniotomy “moment” in pre-op, and he held his hand on my shoulder the entire time we spoke. If you are suffering from SCDS and can get to Chicago, he should be your man.

My wife, my mom, our friend Kevin — it’s been nonstop work for them keeping life working for the kids and me, and I’m so grateful.

I shaved my face today. I can walk easier. But my muscles are tight and my feet hurt from being in bed so much, which adds a bit to the instability.

I took two tylenol yesterday, but the pain is no real issue at all. Just dealing with finding equilibrium and the noise in my head have been the biggest challenge. Will post pictures later.

It’s all going as well as can be expected. The nurses and PT staff are working me as hard as they can.

10 thoughts on “Day Three Post-op

  1. Kat

    Fantastic blog…how are you doing these days??

    I would like to send you a big thanks!! Along with the entertaining read, you’ve helped me out. I’ve got horrible pulsatile tinnitus, along with headaches and visual disturbances. I’ve been told I have migraines and that I’ll have to learn to live with the tinnitus. Now, from research I’ve done, I’ve learned that pulsatile tinnitus can quite possibly be a sign of something more serious, such as intracranial hypertension or an intracranial vascular lesion, and most experts recommend aggressive diagnosis to rule out the risks of things like, oh, blindness or death. So, like you, I’ve had to take my health care into my own hands to find an answer.

    Long story short, by doing a search for “pulsatile tinnitus specialist Chicago”, I came upon your site, and am now going to schedule an appointment with Dr. Wiet or one of his colleagues. So, thanks again for heading me in the right direction.

    I hope you are doing well, and I look forward to the movie!

    1. Brad Post author

      This has made it all worth it, Kat. Thank you for reading and thank you for replying. Some people think I’m crazy for putting this all out there, and maybe I am, but you just made it all worth it. Please keep in touch and let me know how it goes, okay?

    2. Brad Post author

      I thought I had replied to you, but I guess I haven’t So sorry! Your post meant the world to me. Lots of people think I’m crazy for being so public about my problems, but if I can help someone else, it’s all worth it. Please keep me up to date on how you are doing!

  2. Rob

    Brad, thanks for putting your story out there. I’ve been dealing with vertigo and dizziness since November 2012. I was diagnosed with “mild” SCDS in September 2014. My symptoms aren’t debilitating, and my ENT and I have decided not to operate.

    I live in the Milwaukee area and, after reading your blog, will try to schedule a 2nd opinion with Dr. Hain. I have seen 2 physical therapists, an acupuncturist, and chiropractor. Things are more manageable, but still, the symptoms are there.

    With this condition, I feel so tired at times, much more irritable, and anxious that the vertigo may strike at any time.

    What was the surgery recovery like? Are you able to exercise once again?

    1. Brad Post author

      Rob, Dr. Hain is awesome. I think it’s worth the time to get his opinion. Most of the details of my recovery can be found on the blog, but in terms of exercise, I am not doing any, though I’m going to make a go at the elliptical machine in my basement and some light weights starting next week.

  3. Renee

    Hi Brad,
    Not sure if you still go on this site or have a new blog but I wanted to ask how you are doing now? I have an appointment with Dr. Weit this August. I have been white knuckling through this for over two years and just cannot take the pulsatile tinnitus anymore. My symptoms are primarily that, autophony, and sound induced vertigo or imbalance. What someone would consider a normal “bang” sound, sounds more like an explosion that makes me lose my balance for a moment. The last doctor I went to casually told me over the phone that I had SCD and that the only option was “brain surgery, and you wouldn’t want that.” End conversation. Did you find any relief from the surgery? That’s all I want, some relief, and some silence. Please let me know if you read this. Thanks.

    1. Brad Post author

      Your comment forced me to post again for the first time in a while. I have relief, in that I have 90% of what was normally my life before. I still have struggles, as I’m bilateral and the other side is not fixed. I have total hearing loss and tinnitus on my surgery side. But for the most part, I am glad I had it fixed.


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