Track and Field

Hello all,

When I first joined support groups on Facebook, I’d panic at every side effect or bad outcome I read about, when it came to Superior Canal Dehiscence surgery. A wise woman in one of those groups told me to remember that all of the folks with good outcomes had moved on with their lives, and didn’t have time to be checking the boards all f the time. That made sense to me, but only about two weeks ago.

I’ve been back at work for three weeks and feel like I’m tuning in much better than before, and getting stronger. I’m not to where I was this time last year before my symptoms began, but I’m getting through my days fairly well now, and my work days on campus are quite active and stimulating — physically and mentally.  I must also say, that for reasons unrelated to SCDS, my last two weeks have been emotionally stressful, and my response to that stress is drastically improved from the worst days of my symptoms.

The best news is this. I had to teach my daughter to ride her bike, which necessitated running along side her as she rode for brief stretches. Then, trying to keep up with her as she went around the block. If you read My SCDS story, you’ll note that I was a runner before this all went down. In fact, a month before I became severely knocked out, I finished a 5K in about 27 minutes — my best time ever. Well, that jogging with my daughter, led me to think I could run again, and I’ve started back without too many problems. I run one minute and walk three, and can cover two miles that way in under thirty minutes. My fastest mile is 13:48. I have five minutes to shave off, but I’m thrilled to be running again.

I mostly stare at the ground, but try to challenge myself and raise my head to hold the horizon every several seconds, and the bounce seems to be improving. My legs are sore, naturally, but not just from the exercise. My lower back, neck, and outside leg muscles continue to be severely stressed by my new balance situation, so I’m at the Chiropractor and message therapist at least once a week.

The dizziness still comes, but only slightly, and it’s very manageable. I’m starting to believe it’s from my unrepaired side. Two milligrams of Valium each night before bed help with that. My balance is good. I’m no late-life gymnast, but I can walk a balance beam front to back, then do it backwards, then turn and repeat without touching the floor (most of the time).

Noisy, stimulating environments still wear me out, though. And my hearing has not improved in my repaired ear. I may never know why this happened, when so many people report better hearing post-op. Right now, I’m trying to get the most out of every day and enjoy this good period. Because with the other side unrepaired, and potentially unable to be repaired due to the possibility of complete deafness,  I can’t be sure how long it will last.

Here’s a picture of me attempting a (very short) long jump for my two kids:

 

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2 thoughts on “Track and Field

  1. Linda Steber

    Thanks for sharing your journey. I am a bilateral SCD patient. I have had 2 MF Craniotomies. The first one in 2005 was very successful. The jury’s still out on the second one as it was only 3 1/2 months ago.

    It’s always comforting to hear of others who have similar symptoms. Among many other post op issues this time around, I have significant cognitive challenges. We are working to determine whether this is simply a lack of mindfulness due to distraction and constant disequilibrium, sleep deprivation due to constant tinnitus or truly cognitive deficiency that resulted from the surgery and ongoing symptoms. Is my brain too busy maintaining balance to have anything left for recall and concentration?

    So I’ll soon go back to Baltimore for a post op check and hopefully answers will come.

    The intricacies of SCD run deep. I’ve experienced everything from sore muscles and joints (apparently I try to grip the floor with my feet. This should earn me super-hero status, don’t you think?) to my bite being off since the muscle was severed during surgery. And of course the audio and visual disturbances go without saying.

    I’m encouraged to hear you are back doing what you love. I am an actress who misses Community Theatre and a Radio Personality who is having microphone withdrawal. Right now I am unable to work. I have still found ways to be useful and keep my sanity. In the quiet of our home, I voluntarily wrote a comedy skit which was performed at a local conference recently. The skit garnished more laughter than even its creator had hoped for. That felt amazing.

    Blessings to you as you soldier on with SCD. You’re not alone. I appreciate that you have shared your experience. 🙂

    Reply

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