So, long before I was an SCDS suffer, I was diagnosed with Celiac Disease, which is essentially and intense allergy to gluten — most commonly found in wheat, and wheat-like grains.
One of the symptoms of undiagnosed Celiac is a severe loss in bone density to poor absorption of minerals. As a 35 year old male who was at the time a marathoner, I developed osteoporosis in my hips! I’m not convinced that Celiac may have been a culprit in thinning of my tegmen and directly related to my Superior Canal Dehiscence. If the bones in my hips thinned, why not those thin bones in my head?
I’m telling you all of this because very good friends of mine, and very talented Chicago filmmakers, are making an important documentary about Celiac Disease (as I hope to do for SCDS, maybe even with their help), and they need whatever support we can muster for them. Watch the trailer linked below and you’ll see me there, and let me know if I can get you any more information. Please spread the word!