I’m a screenwriter and filmmaker, so I’ve joked about this from day one, but now I’m starting to get serious. Tentative plans are afoot to document my SCDS story. I think it might be of help to people who are seeking a diagnosis, or are dealing with a new diagnosis, to see how this whole ordeal goes. I worry a little bit that it might appear as vanity. “Hey look at me!” But frankly, there are dozens of other movies I’d rather be making that don’t involve a craniotomy. And, clearly, everyone’s experiences and symptoms are different, so I’d try as much as possible to document the vast spectrum of impact superior canal dehiscence has on peoples’ lives.
In all likelihood, we will begin shooting this weekend!