Tag Archives: meniere’s disease

Tensor Tympani Myoclonus

It seems I’m officially the Louvre of collecting strange middle ear problems. So, now, in addition to the Superior Canal Dehiscence Syndrome and Meniere’s Disease, I’ve also been diagnosed with Tensor Tympani Myoclonus. How ’bout them apples!?

What is it? Essentially, it’s a muscle spasm in the inner ear that causes the eardrum to rattle. It sounds like a tympani drum striking inside my head. And it’s fairly constant.

I should have knocked wood more often, because I had just been telling people how Betahistine combined with a diuretic had really helped me get back to feeling close to normal and productive. So this is an obvious bummer, and it makes sleeping without drugs kinda tough.

How does it happen? Well, this muscle is designed to flex when we encounter sudden loud noises, or sustained noise, and works to dampen the sound to prevent ear damage. It’s kind of like a blink reflex protects your eyes from sudden bright light or flying debris. I saw Dr. Hain at Northwestern today, and we discussed possible causes. It could be that due to a Dehiscence on my left side and the resulting autophony symptoms, that this little muscle became overworked trying to protect me. It could also be that I’m too stressed, which they believe is a factor.

So, I would caution everyone, but especially those with inner ear disorders, to protect their hearing in whichever ears they have that still work. I went to the Final Four a few weeks ago, wearing ear plugs, but that may not have been enough.

He prescribed a muscle relaxer, then told me to try and chill. Which is funny. I’m planning to shoot a movie, trying to get tenure, and have two small children. So, relaxation is hard to come by. He also recommends the removal of the ventilation tube in that ear in case it is contributing to the irritation.

I’ll check back in later with more details. In the meantime, knock wood if you are feeling well, and wear hearing protection. Here’s a link to a description of the disorder.

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Meniere’s Disease and SCDS — Pee it Out

So, here’s a funny story.

A long time ago in a land far, far away, where it’s almost always sunny and 73 degrees, I once had an ear problem. Ten years ago at least. Lots of fullness, pulsatile tinnitus, constant infections. An ENT there came to believe I had Meniere’s Disease. So I went on a low sodium diet and took diuretics. Eventually, miraculously, it all went away and I forgot about it.

During my recent troubles, I failed to mention that episode to any of my doctors. It might have made a difference. Dr. Lee believes that Meniere’s Patients with SCDS are more susceptible to ear damage from surgery than those without it. He said he’s never had a patient lose hearing from a surgery, but I might have been his first. That’s very little consolation, but I wonder…. So make sure you discuss Meniere’s, or endolymphatic hydrops with your doc if you are considering any kind of SCDS repairs. It’s something to be aware of as they often go hand-in-hand — or canal to canal.

As for now, since some of my symptoms may be associated with Meniere’s, which happens frequently after significant ear trauma, I’m back to low sodium (in addition to low sugar, no gluten, no alcohol, and no caffeine), and am on a diuretic. I’m seriously peeing enough to solve the California drought issue. I lost three pounds over the weekend — which is good, because a year on prednisone can really pack on the weight.

There was good and bad news on my scans. The good news is that the tegmen repair looks solid, and that the hole on my “good” ear is very small. He does not believe that ear is affecting me. The bad news is, he can’t tell if my “repaired” ear is plugged as it should be. The wax and tissue used to cover the hole do not show up on CTs. So there’s a chance it didn’t hold. No way to know I guess without cracking my head open again. I’m following up on that.

My doc says it could take a couple of months to know whether this low-sodium plan helps resolve some of my current post-op symptoms. In the meantime, I’ll try to remember to put the seat back down.